Fabry Disease: The Next Chapter
Fabry disease has shaped my family's journey, from early diagnosis to the first treatment ever to now. Today I'll reflect on that journey and talk about the next chapter.
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June 12, 2025
6 Time-Saving Cleaning Hacks for Chronic Illness
It can be easy to get overwhelmed with trying to keep a clean house when you have a chronic illness—and even for those who have a lot on their shoulders. We'll talk today about some cleaning hacks to help with the never-ending chore of keeping house.
October 7, 2021
Chronic Illness: 6 Tips for Dealing with Fatigue
In our last post, we talked about dealing with the memory issues that can come with chronic illness. Well, I’m on a roll, because this week we’ll be talking about tips for dealing with fatigue (and next time: time-saving cleaning hacks).
September 23, 2021
Chronic Illness: 5 Tips for Dealing with Memory Issues
Chronic illness sufferers can experience a wide variety of negative symptoms, but perhaps the worst one is seeing your mental capacity decline. Not being able to trust your own mind is a scary thing. Here are five tips for dealing with memory issues.
September 9, 2021
5 Unavoidable Side-Effects of Living With Chronic Illness
Living with a chronic illness can bring many physical challenges, but there are also other inevitable hidden psychological and emotional hurdles. In this post, we'll talk about some of those challenges along with some encouragement.
April 22, 2021
Chronic Illness: 5 Truths I’ve Learned From Fabry Disease
Do you have chronic illness? I do. I have something called Fabry disease. It's been a long road, but I've learned a lot from it.
August 13, 2020
Fabry Disease: The Story Continues
It's been a long journey with Fabry for my family and me, but I have some great news.
June 27, 2019
Chronic Illness: My Story
Easter is here again. I've struggled with what to write; I wanted to do a post in honor of this time. I thought about a "back to roots" type of…
April 7, 2017
