Fabry Disease: The Next Chapter
Fabry disease has shaped my family's journey, from early diagnosis to the first treatment ever to now. Today I'll reflect on that journey and talk about the next chapter.
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June 12, 2025
Chronic Illness: 5 Tips for Dealing with Memory Issues
Chronic illness sufferers can experience a wide variety of negative symptoms, but perhaps the worst one is seeing your mental capacity decline. Not being able to trust your own mind is a scary thing. Here are five tips for dealing with memory issues.
September 9, 2021
5 Unavoidable Side-Effects of Living With Chronic Illness
Living with a chronic illness can bring many physical challenges, but there are also other inevitable hidden psychological and emotional hurdles. In this post, we'll talk about some of those challenges along with some encouragement.
April 22, 2021
Fabry Disease: The Story Continues
It's been a long journey with Fabry for my family and me, but I have some great news.
June 27, 2019
Suicide: My Story
So much of what we deal with is influenced by people and circumstances that come long before we're born because our stories begin before we're born. Thankfully, many things are…
September 20, 2018
Chronic Illness: My Story
Easter is here again. I've struggled with what to write; I wanted to do a post in honor of this time. I thought about a "back to roots" type of…
April 7, 2017
